A (long overdue) update

by Mac

Hi All – sorry it’s taken so long to share a new update. We’ve been a bit up in the air regarding April’s treatment and where it’s taking us. Here’s what we’ve learned:

1. Ixempra isn’t working, which means April needs to switch drugs. We know that because –

2. April’s tumor markers and tumor mass have both gone up since she started taking Ixempra. Roughly speaking, we’re back to where we started when April was first diagnosed.

3. Being back to where we started after 18 months is definitely considered “managed” disease. Would we rather she was already cured? Absolutely! Will we take “managed” as an alternative while we’re figuring out what’s going to work for her? Definitely.

4. April will start taking a variation of Doxil on Thursday. Doxil is the drug that put her in the hospital, but this variation is delivered to the body in a different way that isn’t known for having the side effects that were so hard on April last time.

So, in a nutshell, we’re still moving forward, still in a positive place, still looking for the right treatment for her. And, we’re still loving you guys very much and so very appreciative for each and every one of you, and how wonderfully loving, kind and giving you’ve been to us.

Love to all,

Mac & April

{ 3 comments… read them below or add one }

1 Becky Howard February 11, 2009 at 12:15 am

Thank you for the update. We’ve been waiting eagerly!! I’ll see you SOON!!! Love, Becky H

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2 jill February 17, 2009 at 10:00 pm

Loving you guys too! Thanks for keeping us in the loop. I’m thinking of you and look forward to seeing you soon!

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3 Rondo March 6, 2009 at 8:32 am

Thanks for the update. Jackie, Roxana and I are looking foreword to seeing you both soon.

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